Caring for Patients with Down Syndrome: Tips and Strategies for Creating an Inclusive Healthcare Environment

Learners will hear patient and family perspectives about their experiences within the healthcare system. Although experiences can be diverse and unique, the personal examples shared are designed to help learners gain a more personal understanding of life with Down syndrome and the ways in which the healthcare system can better support the individual and their family. 

Learning Objectives:  

  • Identify helpful communication techniques for working with individuals with Down syndrome and their families in a healthcare setting

  • Describe challenges individuals with Down syndrome and their families face when communicating with health care providers

  • Recognize various dynamics in creating a successful patient-centered care plan for an individual with Down syndrome

Program Format: 

  • 60-90 minutes

  • Speakers: a self-advocate with Down syndrome and their parents/caregivers

    • A DSAW representative will also be in attendance to help moderate.

  • Learners should come prepared to engage speakers in a question-and-answer style discussion.

Optional Program Modifiers:

  • In-person or virtual event

  • With or without video or PowerPoint content

    • at the discretion of the presenter

  • One self-advocate/family or small panel


Contact Mary Gaffron at mgaffron@dsaw.org or 414-327-3729 (Ext: 112) for more information and to discuss how we can best meet your specific program’s needs.

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