Creating Inclusion Through Adaptive Technology
In June, DSAW held a webinar centered around creating successful inclusion through adaptive technology and modifications. Christi Kasa, Ph.D. hosted the webinar; Dr. Kasa is an Associate Professor for the Department of Teaching and Learning and the Director of the Office of Inclusive Services in the College of Education at the University of Colorado. She teaches both graduate and undergraduate classes focused on adaptive instruction and inclusivity schooling for children with disabilities.
In her years teaching, Dr. Kasa has found immense value in visual learning—A number of students absorb knowledge better when they can actually see what is happening. This type of learning can be implemented across all subjects through adaptive technology. For one, Kasa believes students with disabilities should be immersed among their peers rather than separated. Allowing those with disabilities to work together with other students can be beneficial for all parties involved. From there, the individuals can receive any needed technology or other modifications to best aid their learning. During the webinar, Dr. Kasa recommended different forms of adaptive technology, such as applications and online book readers that she has found beneficial through her time working with her students.
Applications:
There are many iPad or other tablet apps that involves this idea of visual learning. Below are some apps that Dr. Kasa has seen work effectively with students:
1. Snap Type
With Snap Type, students can take pictures of documents through the app scanner and then be able to add text or other notes from their device. According to the app store, Snap Type was designed for kids and adults who struggle with their penmanship. The app provides an opportunity for students to better organize their thoughts.
2. Wet Dry Try
The Wet Dry Try app allows students the ability to practice handwriting formations on a device. A tool that sets this program apart from other similar apps is the inclusion of a verbal handwriting coach. This ‘coach’ provides positive reinforcement and instant feedback on penmanship errors. The coach emphasizes the start, sequence, and directionality of all numbers and uppercase and lowercase letters. It is a great example of visual learning as students can see the correct way to form their writing and then try it on their own.
With Clicker Sentences, students are given a variety of words and are tasked to use all of them to create a simple sentence. Per the website: “Clicker Sentences will enable [students] to produce work they can be proud of while learning the key skills necessary for independent writing.”
4. Voice Dream
Voice Dream is a text-to-speech application for students to express what they are thinking and feeling. Hearing words simultaneously while reading them is said to increase understanding and knowledge preservation. Text-to-speech programs, in general, are effective pieces of adaptive technology for individuals with disabilities to express their emotions.
Dr. Kasa uses a variety of other applications in her classroom. Below is a list of her other recommendations:
Clicker Connect https://www.cricksoft.com/us/clicker/ipad/clicker-connect
Manipulatives http://www.brainingcamp.com/product/mobile.html
Prizmo https://creaceed.com/prizmo
Online Book Readers:
Dr. Kasa additionally recommends a variety of book-related adaptive technologies. She believes that technology can be such a powerful aid for those learning to read. Read on below for some adaptive technologies that Dr. Kasa has found beneficial for many of her students:
High Noon Books is a website specifically intended for students who are reading below the reading level for their grade. This program gives recommendations of books at each grade level for all interests and subjects. In each book, there is large emphasis on the most common words of the English language to increase exposure and chances of retaining their meaning.
Special Reads is a high-interest reading program for children and teens with developmental disabilities, such as Down syndrome. With this program, educators can purchase reading bundles that all include a variety of high-interest books, flash cards, textbooks, guides, and specific instructions for teaching. Per the website: “Our high interest books are designed to engage readers from first glance and move them quickly to success.”
Tar Heel Reader allows students to read other users’ easy-to-read book, as well as craft their own book! When doing so, users can use pictures from the websites’ online database, or they can upload their own to aid their storytelling.
With technology constantly evolving, there are more opportunities than ever for adaptive and inclusive innovations to be implemented in society. Dr. Kasa’s recommendations provide only a glimpse of the possibilities that a student with disabilities can utilize to help learn and retain information. Thank you Dr. Kasa for these wonderful recommendations!
Looking Back on July 2019
Statewide
Dr. Skotko Grand Rounds Training & Parent Sessions DSAW along with our partners hosted Grand Rounds Trainings and Parents Sessions with Dr. Skotko around the state this month! We visited Milwaukee, La Crosse, and Madison where Dr. Skotko presented to parents on how to boost cognition in individuals with Down syndrome. Parents had the opportunity to hear insight and asks questions. Dr. Skotko also presented to pediatric residents, medical students, and genetic counseling students on how to deliver a Down syndrome diagnosis and the latest research on Down syndrome. Parents were able to hear insight and ask questions. Thank you to our partners: Madison Area Down syndrome Society, Children’s Hospital of Wisconsin, Waisman Center, and Gundersen Health System. A HUGE thank you to Dr. Skotko for spreading awareness and information to hundreds of medical professionals, parents, and caregivers!
Milwaukee
Down Home BBQ It was a beautiful, sunny day for our Down Home BBQ! Families enjoyed delicious hot dogs, hamburgers, and barbeque chicken while kids played in the Splash Zone and bouncy house. Thank you to the band, Off The Grill for playing at our event
Summer Camp
This month, campers got to visit an alpaca farm, see the new Lion King in theatres, and meet a bunch of new critters during Captive Bred Specialties’ presentation! Some campers even were brave enough to have a snake rest on their shoulders!
Littles Story Time
Children ages 0-6 years old are welcome to join us for Story Time at the state office! Story time is a great way for your child to have a fun while making friends and learning.This month, our incredible self-advocate interns read to the littles! We meet on the first and third Thursday of the month. Let us know you’re coming!
Digitability Class Our Digitability class had another successful month in June! This winter, we launched this award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces. Our summer semester started on June 10th and is held Mondays and Wednesdays at TWO different locations! Learn more about the West Allis location here. Interested in the Eastside location? Click here!
Life Skills Bootcamp
In June, we built a little free library and stocked it with books. We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!
Coffee Club
Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Sign up to join us!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Stay tuned for next month’s activity! Sign up for Tween Club!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, July 12th!
DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.
Chippewa Valley
Wings for All In July, DSAW-Chippewa Valley sponsored Wings for All EAU! This airport rehearsal program is designed specifically for individuals with Autism or other intellectual disabilities. Families were given the opportunity to practice all the steps involved in air travel at the Chippewa Valley Regional Airport. We had so much fun connecting with other families!
La Crosse
Parent’s Night Out This month, parents, grandparents, caregivers, and adult siblings gathered at Senor Villa in Onalaska for a casual evening of food and conversation. Thanks to all who joined us!
Fox Cities
Playdate Families gathered together for a playdate at Washington Park! We had so much fun meeting other families and enjoying the summer day.
Mom’s Night Out Moms, grandmas, and female caregivers of a loved one with Down syndrome had a blast at Mom’s Night Out this month at P.F. Chang’s! We enjoyed appetizers and good conversation with each other.
Green Bay
Self-Advocate Mini Golf Event In July, Self-advocates ages 15+ went mini-golfing. We were at Duck Creek Golf Course for a day of putting and the occasional hole-in-one. So much fun!
Playgroup
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play outside at Voyageur Park in De Pere this month! Join us at Southwest Park in July.
Dad’s Night Out This month, dads enjoyed a night out at Twin Oaks Golf Course for a fun round of golf together!
Mom’s Night Out
The 4th Sunday of every month, moms, aunts, grandmas, and female caregivers come together for DSAW-Mom’s Night Out. In June, we dined at Rustique Pizzeria in Green Bay. Join us next month: RSVP Here!
Central Wisconsin
Pool Party
DSAW-Central WI families traveled to Rothschild Pool for a fun day of splashing in the water. Some of us even went down the big, blue slide! Perfect way to kickstart the summer! We also went to Rotschild Pool later in the month to beat the summer heat once again!
Sibling Event Kids who have a sibling with Down syndrome enjoyed a day at Sawmill Adventure Park. There, they were busy playing mini golf and jumping on the bounce house! Fees for the siblings were covered by DSAW.
MADSS
Golf Outing MADSS had a successful Golf Outing this past month! The event took place at the Oaks Golf Course with 18 holes of golf and other fun games! The evening culminated in a dinner and program where raffle prizes were announced!
Rock County Family Picnic In July, MADSS hosted family picnic at Peace Park Pavilion. The day was spent eating, listening to music, creating crafts, and jumping in the pool. It was a great way to celebrate summer!
Dane County Family Picnic Dane County families enjoyed a family picnic at McKee Farms Park! We spent the day playing games, making crafts, eating yummy food, listening to great music, and jumping around in a bounce house!
Mom’s Night Out
This month, marvelous MADSS moms gathered at La Casa Grande! We always love this time to catch up with moms over appetizers and soft drinks.
North Central
Family Picnic North Central families had so much fun at a family friendly, summer picnic this month! Families headed to City Park for yummy food and running through the splash pad. Thank you to everyone who joined us for this day full of summer activities!
Meet a DSAW Leader: Morgan
Hello DSAW friends and family, my name is Morgan Brzank and I am a board member for DSAW-COTH-La Crosse. I currently reside in La Crosse near UW-La Crosse but I am originally from New Berlin, WI (near Milwaukee). I am about to go into my senior year of college, studying with a major in Business Management and a minor in Healthcare Analytics with an emphasis in Human Resources (a mouthful, I know!).
I always say my path with DSAW is not only unique but one of my biggest blessings, and proves you never know what will open up doors and opportunities in your life. In high school, I was on my school’s dance team and one of our coaches asked me to help coach our communities Special Needs and Abilities Poms (SNAP) team. I fell in love with coaching these girls immediately and I also met my friend, Alexis Malloy while coaching that team. Here, her family asked me to become a supporter for Alexis where I got to help Alexis with things like work, respite, healthy habits, tutoring and so on. This experience also opened up the opportunity to learn about DSAW and I began volunteering there throughout high school (I still work for her remotely). Through Alexis, I met Dawn Nuoffer and the fabulous Abby.
Through all these opening doors, I made my way to becoming a board member for the La Crosse chapter when moving to La Crosse for college. I am now the Secretary for our board and I love helping out with the volunteers in our area, having a part in the DSAW walk, and getting involved with the Self-Advocates when I can. Last summer, I had the blessing of working at DSAW Headquarters as an intern – best summer ever! I even work for DSAW Family Services from time to time. DSAW and all the individuals with Down syndrome have changed my life and I am so honored to continue my work in this community. As I finish up my last year in college and look forward to new directions, I am excited to continue being a DSAW member for La Crosse and being involved in DSAW overall!
Dawn Nuoffer: Nonprofit Leadership — Grass-roots organization branches out
Meet a DSAW Leader: Intern Edition
Meet DSAW’s hard working Summer 2019 Interns! We couldn’t do the work we do without these amazing and passionate individuals. Read below to learn more about Ava, Brett, Lindsey, Mariah, and Michelle!
Ava Landmeyer, Social Work/Programming Intern:
My name is Ava Landmeyer and I am so excited to be interning with DSAW this summer! About 8 months ago, I began volunteering at DSAW’s Tween Nights after hearing about DSAW through the Breathe Respite Program a couple years back. I’ve always felt a pull towards working with individuals with special needs, and I’ve been lucky enough to learn just how much I love this type of work through a few different opportunities, such as working as an assistant Irish dance teacher, Best Buddies club, Breathe Respite, and now DSAW! It’s been such an amazing experience getting to know everyone at DSAW and getting more involved in some of their amazing programs. Besides working with DSAW and similar organizations, I also spend my time Irish dancing and working as a Certified Nursing Assistant. I am so looking forward to the opportunity to work with DSAW and all of its fantastic members.
Brett Braza, Marketing & Communications Intern:
Hello! My name is Brett Braza and I am the Marketing & Communications Intern here at DSAW. Although I have only been working here for a year, I can say with confidence that this incredible organization has changed my life. I have been lucky enough to meet so many inspiring self-advocates, many of whom I would call my heroes. These self-advocates have proven that just because an individual has a disability does not mean they are limited in life—they are capable to do anything! I plan on bringing that perspective to school and throughout the rest of my life. Speaking of school, I just finished my freshman year at the University of Minnesota! I absolutely love the Twin Cities area and will be excited to be back up there again in August. I am studying Marketing and Non-Profit Management through the Carlson School of Management, two fields of study greatly inspired by my work with DSAW! In my free time, I enjoy running, traveling Up North, and watching movies, specifically Pixar and Marvel movies! I am trying to improve my cooking skills this summer as I will be living in an apartment next year in the Twin Cities. But, that is a work in progress! I am so excited to be at DSAW for the summer!
Lindsey Clark, Social Work/Programming Intern:
Hi! My name is Lindsey Clark and I am a Social Work/Programming intern at DSAW in West Allis. I am currently a senior at Marquette University studying Social Welfare and Justice and Gender and Sexuality Studies. I am originally from Detroit but have loved living in Milwaukee these past three years. After I graduate, I plan on pursuing my Masters in Social Work and hope to work to support individuals and impact my community. I wanted to be involved with DSAW, not only to gain experience working with the programming of a non-profit, but also to join the strong community that advocates for the dignity of all individuals. Although I am only in my first month of interning here, I have quickly grown to love the people and mission of DSAW. In my time as a DSAW intern, I can't wait to learn, grow and become a part of this amazing community.
Mariah Ganyo, Social Work/Programming Intern:
Hello! My name is Mariah Ganyo and I am apart of the programs internship at DSAW for the summer. I just graduated this spring from The University of Wisconsin- Stout with a bachelors of science degree in Human Development and Family Studies and a concentration in social work. I grew up in a suburb outside of the twin cities in MN and my next door neighbor who is one of my best friends is a person with Down syndrome. Him and many of his friends helped me find my passion for helping others. In my free time, i enjoy being outside, reading a book, out shopping with friends and family, or inside trying to cook a delicious recipe off of Pinterest. I am so happy to be apart of DSAW and can’t wait to get to know all of you!
Michelle Dieckelman, Nonprofit Management & Event Planning Intern:
Hi! My name is Michelle Dieckelman and I am the Nonprofit Management and Event Planning Intern for DSAW. I am a junior at UW-Madison, double majoring in communicative science & disorders and communication science & rhetorical studies. My career aspiration is to be a speech pathologist in the NICU. I am from a family of 5 – my parents, a brother, and a sister. At UW – Madison, I am involved with the Special Olympics of Wisconsin, Moment of Magic, and Badgers Give Back. All of these experiences have brought me down the path of working at DSAW. I participate in flag football and volleyball with the Special Olympics of Wisconsin and it has brought me so much joy and great friendships. With my Moment of Magic organization, I get to dress up as a female superhero and help children to feel “brave, strong, and fearless.” DSAW is a great organization and I am so fortunate to have the opportunity to work as an intern for the summer. I can already see the impact this organization has on the community and I cannot wait to be part of this amazing organization and team.
Looking Back on June 2019
Milwaukee
Brewers Outing
Take me out to the ball game! DSAW-families gathered for the BIGGEST TAILGATE of the year. There, we enjoyed a delicious lunch graciously donated by Just One More Ministries before heading into Miller Park for the Brewer’s Game! Thank you to all who could join us for this awesome event!
Summer Camp
Our summer-long camp began in mid-June. Campers learned about recycling, created posters about themselves, and even walked to Krispy Kreme’s to purchase delicious donuts! Week 2 was Everything Disney week, and we get to take a field trip to see Toy Story 4!!
Bike Camp
In June, DSAW once again partnered with the Autism Society of Southeastern Wisconsin to host the iCan Shine Bike Camp. The camp worked to help individuals with special needs learn to ride a two-wheeled bicycle independently.
New Summer Offerings
During June, DSAW launched new summer programs, including Littles Art Program, Life Skills & Laughter, and Safety & Self-Defense! We love having an office full of amazing friends of all ages! Click here to learn more or to sign-up!
Littles Story Time
Children ages 0-6 years old are welcome to join us for Story Time at the state office! Story time is a great way for your child to have a fun while making friends and learning.This month, our incredible self-advocate interns read to the littles! We meet on the first and third Thursday of the month. Let us know you’re coming!
Digitability Class Our Digitability class had another successful month in June! This winter, we launched this award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces. Our summer semester started on June 10th and is held Mondays and Wednesdays at TWO different locations! Learn more about the West Allis location here. Interested in the Eastside location? Click here!
Life Skills Bootcamp
In June, we built a little free library and stocked it with books. We meet every Tuesday year-round to learn a variety of fun, practical life skills while making new friends. Stay tuned for next month’s topic! Register Here!
Coffee Club
Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup too! Sign up to join us!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northeastside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At DSAW’s Tween Club, we play games, watch movies, make crafts, and have a great time hanging out! Stay tuned for next month’s activity! Sign up for Tween Club!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, July 12th!
DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.
Sheboygan
Red, White, & Shine: Red Carpet Date Night
DSAW families and couples had a blast playing mini golf at our Red Carpet Date Night. The event was held at the Harbor Pointe Miniature Golf and proceeds went towards DSAW-Sheboygan! It was night full of countless memories and was the perfect way to kick off the Fourth of July festivities.
Dance Class
We finished up our Dance Class at In Motion Dance Studio in Plymouth this month! The goal of the class is to get the group moving, sweating, learning, and having fun. The class is taught by Heather Jankus, Elite Coach at In Motion Dance Studio.
Music Therapy
In partnership with Take Note Studio in Kohler, Kindermusik hosted a three-session music therapy class! Each week, DSAW children sang, danced, and played instruments with their parents and new friends! The class celebrated the unique joys of the children!
La Crosse
Bike Camp
The 2nd Annual Bike Camp for children with disabilities in La Crosse was held this month. Children enrolled in the camp were provided with instruction to ride a two-wheel bike by Adapted Physical Education Teachers and UW-La Crosse Adapted Physical Education students. We loved watching our friends learn how to bike independently!!
Green Bay
Brat Fry Fundraiser
In June, the Green Bay chapter hosted a Brat Fry Fundraiser to support DSAW. We grilled some delicious brats outside of Festival Foods and had a blast while doing so! Thank you to all the volunteers who helped during this event!
Playgroup
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. We got to play outside at Voyageur Park in De Pere this month! Join us at Southwest Park in July.
Mom’s Night Out
The 4th Sunday of every month, moms, aunts, grandmas, and female caregivers come together for DSAW-Mom’s Night Out. In June, we dined at Rustique Pizzeria in Green Bay. Join us next month: RSVP Here!
Central Wisconsin
Pool Party
DSAW-Central WI families traveled to Rothschild Pool for a fun day of splashing in the water. Some of us even went down the big, blue slide! Perfect way to kickstart the summer!
Picnic & Playdate
In June, we gathered for a picnic and playdate at Kash Park. Families brought yummy summer foods to pass, while kids enjoyed playing with their friends on the playset. Thank you to all who were able to join in on the fun!
Wheels of Hope Cruz’n 4 Down Syndrome
Wheels of Hope hosted their 3rd Annual Cruz’n 4 Down Syndrome Event. 2-wheelers and 4-wheelers came from all over for a 100 mile ride. Along the way, there was food and prizes at five different spots. Thank you to the band Thunder Country for providing entertainment at the finish point!
Fox Cities
Bike Camp In June, DSAW-Fox Cities offered the iCan Shine Bike Camp for individuals with special needs to learn to ride a two-wheeled bike independently. A huge thank you to Covey for partnering with us and to all the volunteers who ran, clapped, and encouraged riders!
Brewers Outing Fox Cities families made a fun bus trip down to Miller Park for the big DSAW tailgate and Brewers game! Kids and adults had a ton of fun catching up with other families over good food and fun.
MADSS
Family Zoo Day & Ice Cream Social
The Family Zoo Day & Ice Cream Social was the perfect way for MADSS families to get together and start summer off on the right foot. Families got to explore the exhibits and see the animals at Henry Vilas Zoo before meeting outside for an ice cream social! MADSS provided the yummy ice cream and surplus of toppings!
Family Bowling Day
Strike! MADSS families had an awesome time on the lanes this month. There were two bowling events in June! One for Sauk and Columbia County, and another for Jefferson County! Thank you to all the families that could come on down!
Dynamic Duals: DS-ASD
MADSS & GiGi’s Playhouse sponsor Dynamic Duals every month! It is a group for families with a child with DS-ASD or other significant behavioral challenges. It’s a time to connect and have fun, share successes and resources, and brainstorm ideas and strategies for challenges.
Mom’s Take 5
MADSS has a Mom’s Night Out on the 5th of every month! This month, marvelous MADSS moms gathered at Me & Julio in Fitchburg! We always love this time to catch up with moms over appetizers and soft drinks.
Parent’s Night Out
This month’s Parent's Night Out was held at Great Dane Pub & Brewing Company in Hilldale! Parents, grandparents, adult siblings, and caregivers gathered for a fun evening of conversation and good eats.
Looking Back on May 2019
Milwaukee
Club DSAW
Club DSAW celebrated Cinco de Mayo at the delicious Botana’s restaurant in Milwaukee. To say we enjoyed their Mexican cuisine is an understatement! It was delicious! Next month, Club DSAW spending the day at a family hobby farm! Join us!
Monkey Joe’s Party Kids had a ball bouncing, jumping, and laughing at our Monkey’s Joe Party! The morning was spent racing through obstacle courses, jumping in the bounce house, and sliding down the giant inflatable slide. Monkey Joe’s even opened an hour early just for us!
Digitability Class Our Digitability class had another successful month in May! This winter, we launched this award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces. Our summer semester starts up on June 10th, and will be held Mondays and Wednesdays at TWO different locations! Learn more about the West Allis location here. Interested in the Eastside location? Click here!
Life Skills Bootcamp
In May, we worked in the DSAW garden, prepping, planting, watering. We are excited to watch the plants grow all summer long! In June, we will be building a little free library and stocking it with books. Register Here!
Coffee Club
Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupation therapy skills in a free environment, while parents enjoy coffee and each other’s company. We offer free music therapy in conjunction with playgroup! Sign up to join us!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At this month’s Tween Club we had peers from the Delafield Family Tae Kwon Do Champions come to teach us some tae kwon do! Stay tuned for next month’s activity! Sign up for Tween Club!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, June 14th!
DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.
Alzheimer’s Group Our Alzheimer’s group meets every third Tuesday of the month. All parents, caregivers, and family members who have a loved one with Down syndrome going through the aging process are invited to share and connect with others with similar stories. Click here to sign-up!
Sheboygan
Alpaca Farm Tour
In May, DSAW-Sheboygan families traveled to the LondonDairy Alpaca Ranch. We got to have our own private tour of the ranch where we even got to feed and hang out with the alpacas.
Sheboygan Dance Class
We continued our Dance Class at In Motion Dance Studio in Plymouth this month! The goal of the class is to get the group moving, sweating, learning, and having fun. The class is taught by Heather Jankus, Elite Coach at In Motion Dance Studio. There will be two sessions in June (6/9 and 6/23).
La Crosse
Parent’s Night Out
This month, DSAW-COTH-GLA parents dined at Fiesta Mexicana for Parent’s Night Out. It provides the perfect opportunity for parents, grandparents, and caregivers to converse with other DSAW adults while enjoying delicious food. Hope you can join us for our next night out in July! RSVP here.
Green Bay
Playgroup
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. Since the weather has been warming up, we got to play outside at Voyageur Park in De Pere this month!
Mom’s Night Out
The 4th Sunday of every month, moms, aunts, grandmas, and female caregivers come together for DSAW-Mom’s Night Out. In May, we dined at Old Mexico in Green Bay. Join us next month at the Rustique Pizzeria. RSVP Here!
Chippewa Valley
Financial & Legal Planning Seminar
Parents gathered for a Financial and Legal Planning Seminar in May! Charles Zwiefelhofer, Financial Advisor at Woita & Associates and Nick Heike, owner of Heike Law Offices presented to us on financial and legal planning topics such as how to get started with a special needs trust, how to fund it, etc. We really enjoyed this time learning alongside fellow DSAW parents.
Central Wisconsin
Wellness Club
This month, Wellness Club served as a perfect opportunity for teens and young adults to learn more about nutrition! Additionally, teens and young adults were able to get active through fitness activities! Thank you to our instructor, Dana, who taught our group about nutrition plans and fitness activities.
Mom’s Night Out
This month, moms, grandmas, and female caregivers gathered at Townies Grill in Wausau for a Mom’s Night Out. The night was filled with delicious food and fun conversation.
MADSS
Self-Advocate Laser Tag Outing
This month, self-advocates were able to enjoy a FREE evening of laser tag at UltraZone. The self-advocates suited up in laser tag gear and were able to play multiple games in the arena. It was a night full of laughter, adventure, and some serious laser tag action!
Family Fun Night – Coral Cove Family Fun Center
We had a blast at Coral Cove Family Fun Center for our Family Fun Night! MADSS families were able to bowl, play in the arcade, jump in the bouncy house, relax in the massage chairs, and much more! They were even able to enjoy a catered meal from Bravo’s!
Dynamic Duals: DS-ASD
MADSS & GiGi’s Playhouse sponsor Dynamic Duals every month! It is a group for families with a child with DS-ASD or other significant behavioral challenges. It’s a time to connect and have fun, share successes and resources, brainstorm ideas and strategies for challenges.
Mom’s Take 5
MADSS has a Mom’s Night Out on the 5th of every month! This month, marvelous MADSS moms gathered at Tanner’s Bar & Grill in Middleton! We always love this time to catch up with moms over appetizers and soft drinks.
Parent’s Night Out
This month’s Parent's Night Out was held at Breakwater in Monona! Parents, grandparents, adult siblings, and caregivers gathered for a fun evening of conversation and good eats.
Fox Cities
FrienDS Club
We had fun at this month’s FrienDS Club. Teens had fun playing games together, listening to music together, and watching movies together. We will be taking a break from FrienDS Club over the summer, but we’ll be back when September rolls around.
Mom’s Night Out
We spent this Mom’s Night Out at one of Appleton’s highly rated newer restaurants—Wilder’s Bistro. Mom’s Night Out is for moms, aunts, grandmothers, and caregivers of a loved one with Down syndrome.
Meet a DSAW Leader: Garrett
Hello! My name is Garrett Lancelle and I am a DSAW-Central Wisconsin Board Member. I am also a proud husband and father to three wonderful children (JJ (1), Isabelle (4), and Gavin (6). I am also a sibling to Max, Katie, and Joe and son to Paul and Nancy. I have worked as a special education teacher for the last 9 years throughout Central Wisconsin (Edgar, D.C. Everest, and Wausau School District). My family and I reside in Weston, Wisconsin.
My journey to DSAW stemmed from being a part of a family who lived by the motto of "putting the FUN in DYSFUNCTIONAL". More than that I lived in a family of love.
My siblings, Max and Katie, have Down Syndrome. My parents were amazing advocates. My brother Joe and I can attest that we are the people we are today due to being the siblings of Max and Katie. Max and Katie helped us to understand how to conquer fears, fight through adversity, and fight through the most difficult of task that life presents.
My experiences as a sibling, son, and special educator have led me to being a part of DSAW. I have seen the impact our community has on families and look forward to our growth in the future!
Looking Back on April 2019
Statewide
NDSS Adult Summit
Dawn Nuoffer, Executive Director, and Rachel Reit, Marketing and Development Manager, presented on a panel at the National Down Syndrome Society Adult Summit this month! They had a great time with our friends of Down Syndrome Network of Arizona talking about adult and aging programs. One of our favorite parts of the summit was a presentation by Karen Gaffney, an incredibly accomplished self-advocate, who talked all about changing the playing field for adults with Down syndrome!
Milwaukee
Club DSAW
We kicked off our first Club DSAW of 2019 this month with a karaoke event! We rented out a private room at Punch Bowl Social and enjoyed an afternoon filled with songs, snacks, and laughs! Self advocates ages 18+ had so much fun belting out their favorite tunes with good friends! Stay tuned for next month’s Club DSAW activity!
Family Bowling Event Families had a blast bowling at Castle Lanes in Racine! This was a great time for all ages and abilities. It’s always fun to socialize with fellow DSAW families while hitting the lanes. We even enjoyed a yummy pizza lunch!
Digitability Class Our Digitability class had another successful month in April! This winter, we launched this award-winning employment-readiness course used to prepare students with special needs for today’s tech-driven workplaces. Our summer semester starts up on June 10th, and will be held Mondays and Wednesdays at TWO different locations! Learn more about the West Allis location here. Interested in the Eastside location? Click here!
Relationships Class
This month, we wrapped up our course on relationships for individuals with special needs. Throughout the course, we learned about personal boundaries, dating, self-defense, stranger danger, and safety.
Nutrition & Wellness Class
This month we continued our two sessions of the Nutrition and Wellness Class. The class meets twice a week throughout the spring and participants have been learning about personal health and well-being, exercise, and healthy cooking. This month students made a healthier (and super yummy) version of chocolate chip cookies!
Life Skills Bootcamp
In April, we participated in a number of service projects! We had so much fun giving back to others while learning new skills. Stay tuned for May’s topic. Register Here!
Coffee Club Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupational therapy skills in a free environment, while parents enjoy coffee and each other's company. We also offer free music therapy in conjunction with playgroup! Sign up to join us!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northside location in Mequon! This location meets the first and third Wednesday of the month! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! At this month’s Tween Club we had peers from the Delafield Family Tae Kwon Do Champions come to teach us some tae kwon do! Stay tuned for next month’s activity! Sign up for Tween Club!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, May 10th!
DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.
Central Wisconsin
FUNdamentals of Special Education
In April, fellow parents joined us for a discussion on Special Education! We talked about IEP teams and tips for parent advocacy! DSAW member and special education teacher, Garrett Lancelle, conducted a brief presentation, followed by a group discussion. Thank you to the parents who joined us and contributed to this very important discussion!
Wellness Club
This month we launched Wellness Club thanks to the support of the Wausau-Marathon County Fund of the Community Foundation of North Central Wisconsin! This club provided a great learning opportunity for both teens and young adults to learn more about nutrition and fitness. Thank you to our instructor, Dana, who taught our group about nutrition plans and fitness activities. Sign up for the next Wellness Club here!
Dad’s Night Out
Dads, uncles, grandpas, and male caregivers gathered at Townies Grill this month for a casual social. We always enjoy this night of food and conversation with other men who have a loved one with Down syndrome!
La Crosse
All Abilities Day
This month we partnered with the La Crosse Area Autism Foundation for All Abilities Day! This is always a great opportunity at the La Crosse Wellness Center for families to chat with local therapy providers and disability resources.
Inclusion Night
We had a blast at Inclusion Night at the Children’s Museum of La Crosse! DSAW-COTH-GLA co-hosted this fun night in partnership with the La Crosse Area Autism Foundation! Families got to enjoy the museum at their own pace, without the extra stimulation of busy open hours. The night included sensory-friendly exhibits, snacks, and fun with other families!
Green Bay
Playgroup
DSAW-Green Bay meets the first Saturday morning of every month for playgroup. This winter, we escaped the chilly outdoors by bouncing around at Get Air Trampoline Park! They offered our families a dedicated time just for jumpers with special needs. Now that it is warming up, we will hold playgroup at Voyageur Park in De Pere next month!
Blizzard Game Resource Table
This month we hosted a resource table before the Blizzard game against the Nebraska Danger! DSAW-Green Bay members sold tickets for a special DSAW raffle basket. The lucky winner was announced during the game. Thanks to everyone who visited our table!
Dad’s Night Out
Dads had an extra fun Dad’s Night Out this month! DSAW men gathered for an exciting game of tactical laser tag at the Battle House! Players were given a mission that required team strategy and tactics to accomplish!
Parent’s Night Out
This month parents, grandparents, caregivers, and adult siblings gathered at Mackinaw’s in Green Bay for a Parent's Night Out! We always enjoy this time catching up with fellow DSAW adults over good food and drinks.
Self-Advocate Event at Get Air
Self-advocates enjoyed a fun day at Get Air Trampoline Park! Jumpers of all abilities bounced around at the trampoline park while socializing with each other. Thank you to the self-advocates who joined us for this entertainment filled day!
MADSS
Mom’s Take 5
MADSS has a Mom’s Night Out on the 5th of every month! This month, marvelous MADSS moms gathered at Tanner’s Bar & Grill in Middleton! We always love this time to catch up with moms over appetizers and soft drinks.
Dynamic Duals: DS-ASD MADSS & GiGi’s Playhouse sponsor Dynamic Duals every month! It is a group for families with a child with DS-ASD or other significant behavioral challenges. It’s a time to connect and have fun, share successes and resources, brainstorm ideas and strategies for challenges.
Parent’s Night Out
This month’s Parent's Night Out was held at Breakwater in Monona! Parents, grandparents, adult siblings, and caregivers gathered for a fun evening of conversation and good eats.
Family Field Trip
We had so much fun on our Family Field Trip to the Madison Children's Museum! Families discovered, played, and learned while hanging out with other MADSS families. This day provided entertainment for all ages.
North Central
Bowling Event
DSAW-North Central Families gathered for a fun day of bowling at North Star Lanes in Antigo! Families enjoyed this time to catch up up with each other while hitting the lanes. Thank you to everyone who came out to join us for this wonderful event!
Fox Cities
Puberty Workshops
DSAW-Fox Cities offered Puberty Workshops this month. Terri Couwenhoven, MS, CSE, a well-known sex educator and author, presented these workshops designed especially for pre-adolescents. Parent/daughter workshops and parent/son workshops were presented separately and were full of useful information.
Jump with a Buddy
DSAW-Fox Cities kiddos as well as our Teen FrienDS Club enjoyed a private party at Vertical Velocity Trampoline Park! We also had yummy pizza and soda! Thank you to everyone who joined us for this fun day!
Sheboygan
Dance Class
This month, we kicked off our DSAW Dance Class with In Motion Dance Studio in Plymouth! Kiddos enjoyed moving, sweating, and learning all while having fun! Throughout the next two months, students will learn how to stretch and create a foundation of dance techniques. All ages and abilities are welcome to participate in this class - join at anytime! Register here.
AngelSense - Using Technology to Keep Families Safe
This post was written by an AngelSense Staff Contributor.
When a child wanders, it is a life-threatening event. Wandering is most often associated with children with autism, but many children and adults with Down syndrome are also prone to this unpredictable behavior. Keeping our loved ones who wander safe is an around the clock challenge, as some have difficulty understanding safety issues and communicating with others.
The good news is that AngelSense GPS has created a solution for parents and caregivers. It includes a GPS device with voice capabilities, advanced data analytics, and a Smartphone app used by caregivers and first responders, all designed specifically for individuals with special needs.
AngelSense GPS does more than offer reassurance to families and freedom to those who use it. Proven to prevent the hazards of wandering, it actually saves lives.
What sets AngelSense apart from other GPS systems is that it has 4 crucial, life-saving elements.
Proactive Alerts - AngelSense automatically detects deviations from the norm, such as an unexpected arrival to an unknown place or a late departure. It creates a daily timeline logging every location visited and provides detailed routes.
Non-stop Monitoring - The device is always tracking, even when the Guardian phone app is closed.
On All Day - Sensory friendly wearables help to secure the device, making it removable only with a magnetic key held by the parent or caregiver. The device itself is on all day as well, to be powered off only through the Guardian phone app.
Quick Response Tools - A rich set of tools through the application such as live 10-second updates and map location, auto- pickup 2-way voice features, an alarm and a first responder alert all make a potential search quick and effective.
By using AngelSense, parents are able to diffuse wandering incidents before they escalate to a potentially dangerous event. AngelSense has no range limitation and tracking is possible from anywhere using a Smartphone. Sometimes, it’s simply the peace of mind that you have, knowing exactly where your loved one is, whenever during the day, wherever you are.
"We went camping over the weekend and did you know, I knew exactly where he was at the campground?!!!! I saw him at the lake, the pool, ice cream stand, and playground!!!" Tracy Daly, Executive Director, Down Syndrome Association of the Hudson Valley.
With the innovative technology that is available to families with AngelSense, help is always right around the corner.
La Crosse community celebrates World Down Syndrome Day with a Saturday Sock Hop
Families gather to celebrate World Down Syndrome Day
Thursday is about making public aware of Down syndrome
Families Celebrate World Down Syndrome Day in Antigo
Looking Back on March 2019
Milwaukee
World Down Syndrome Day Waterpark Event
We had a blast celebrating World Down Syndrome Day a few days early at the waterpark! Southeastern WI families gathered at the Ingleside Hotel & Waterpark for a day full of fun! Thank you to everyone who came out and celebrated with us!
New Parent Breakfast
This month we hosted a New Parent Breakfast at our headquarters! This provided the opportunity for fellow parents to make connections, learn about DSAW programs and services, and hear about the other important resources in the area! We got to do this all over a yummy breakfast. Thank you to the families that joined us for a morning of learning and fun!
Ben’s Cycle Indoor Century Ride
Thank you to our amazing friends at Ben's Cycle/Milwaukee Bicycle Company Racing team for hosting an Indoor Century Ride to raise funds for DSAW! Teams rode 100 miles to benefit DSAW and raised over $4,000!
Family Movie Event
We ended the month with a sensory-friendly, private screening of Wonder Park at the Marcus Ridge Cinema in New Berlin! We rented out an entire theater for our families, and the sound was played lower and lights were on brighter. Thank you to all the families who joined us for this screening!
Digitability Class
Our Digitability class had another successful month in March! This new course is an award-winning employment-readiness program used to prepare students with special needs for today’s tech-driven workplaces. Young adults meet Mondays and Wednesdays through May at the state office. Learn more here!
Relationships Class
We had another great month of our course on relationships for individuals with special needs. Throughout the course, we have been learning about personal boundaries, dating, self-defense, stranger danger, and safety. Learn more here.
Nutrition & Wellness Class
This month we continued our two sessions of the Nutrition and Wellness Class offered through DSAW and DSAW-Family Services. The class meets twice a week throughout the winter and participants will learn about personal health and well-being, exercise, and healthy cooking. This month students made healthier versions of two yummy foods - tacos and brownies!
Life Skills Bootcamp
In March we talked all about self advocacy, self-advocacy skills, and why they are important. Stay tuned for April’s topic, Register Here!
Coffee Club Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupational therapy skills in a free environment, while parents enjoy coffee and each other's company. We also offer free music therapy in conjunction with playgroup! Sign up to join us!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northside location in Fox Point! This location meets the first and second Fridays of the month from 7 - 9 PM! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! Next month's Tween Club will be on Friday, April 12th. Drop your 10+ year old off for a night of games, snacks, activities, and more. At next month’s Tween Club, we have peers from the Delafield Family Tae Kwon Do Champions coming to teach us some tae kwon do! Sign up!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday, April 12th!
DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.
Central Wisconsin
World Down Syndrome Day Party
DSAW-Central WI partnered with GiGi's Playhouse Wausau to provide an afternoon of bounce houses, games, food and photo prop fun in celebration of World Down Syndrome Day! Thank you to all the families who came out to join us for this fun day!
Parent Coffee Date
Parents gathered for coffee and conversation at Vino Latte on World Down Syndrome Day! Parents, grandparents, and caregivers attended this casual social. We always enjoy this time gathering with fellow parents.
Family Night Out
DSAW board member and parent, Kris Halvorson, graciously opened her home for a fun family night this month! Families enjoyed pizza and conversation with other families who have a loved one with Down syndrome.
Chippewa Valley
World Down Syndrome Day Party
DSAW-Chippewa Valley families celebrated World Down Syndrome Day at Action City and Chaos Waterpark! We started the day bouncing around at the trampoline park followed by a pizza buffet! We ended this fun packed day at the waterpark! Thank you to all the families who joined us to celebrate!
La Crosse
World Down Syndrome Day Event
DSAW-La Crosse Families gathered for a Sock Hop themed Celebration for World Down Syndrome Day! The afternoon included a yummy lunch and a guest performance by Applause Dance Academy. Families even got to join in on the dancing and do the Cha Cha Slide! Andrew Gerbitz from Andrew’s Voice made an appearance and talked about his journey! We also got to enjoy some delicious cake. One of our favorite parts of this day is the famous wall of extra chromosome posters - this year we had 34 wonderful faces adorning it!
Parent’s Night Out
We always enjoy Parent’s Night Out! This month we met at Features Sports Bar and Grill in West Salem for a casual evening of food and conversation. Our next Parent’s Night Out will be held on May 18th at Fiesta Mexicana! RSVP here!
Green Bay
Playgroup
DSAW-Green Bay held their playgroup at Get Air Trampoline Park this month! They offered a dedicated time just for jumpers with special needs. We will be at the trampoline park again in April. Sign up here!
Mom’s Night Out
This month moms, aunts, grandmas, and female caregivers gathered at the Cannery for a Moms Night Out! We always enjoy this time socializing with fellow DSAW women.
WDSD Bowling Party
We celebrated World Down Syndrome Day with a bowling party! Green Bay families gathered at the Gutter for an afternoon filled with bowling, pizza, and celebration! Thank you to everyone who joined us for this fun event to celebrate our loved ones with Down syndrome!
MADSS
Mom’s Take 5
MADSS has a Mom’s Night Out on the 5th of every month! This month, moms gathered at the Great Dane Pub & Brewing Co. We love this time for moms to enjoy conversation with one another over appetizers and drinks.
Dynamic Duals: DS-ASD
MADSS & GiGi’s Playhouse sponsored Dynamic Duals this month! It is a group for families with a child with DS-ASD or other significant behavioral challenges. It’s a time to connect and have fun, share successes and resources, brainstorm ideas and strategies for challenges. For more information or to RSVP, please contact Wendy Kaplan at: info@MADSS.org.
Self-Advocate Hockey Outing
Self-advocates had a great time at the Madison Capitols game! The night was filled with cheering and laughing at the ice arena!
Parent’s Night Out
We kicked off the month with a Parent's Night Out at Vintage Brewing Co! Parents, grandparents, adult siblings and caregivers joined us for a casual evening of conversation and good eats.
Family Bowling and Pizza Party
Families enjoyed a bowling and pizza party at RiversEdge Bowl! We had tons of fun bowling and eating yummy pizza with other MADSS families!
Playgroup
This month we had our first playgroup in Janesville! Parents had the opportunity to discuss specific goals and needs for the children with CI Therapy staff while the kiddos played!
Day with the Experts: Down Syndrome
This event was hosted in partnership with Gigi’s Playhouse Madison as a part of the Waisman Center Day with the Experts series. The series is sponsored by the Friends of the Waisman Center. Attendees learned about advances in research and clinic services as well as hear from a panel of experts consisting of individuals with Down syndrome and their family members.
Gallery 21
We spent the evening of World Down Syndrome Day celebrating increased awareness, acceptance and inclusion of people with Down syndrome. This year’s theme was “Be a Dreamer” and featured photographs of local kids and adults with Down syndrome doing the things they love. Thank you to Geoffrey Mikol, photographer and owner of River Bend Gallery!
WDSD Movie at the Library
The Madison Public Library - Meadowridge hosted a movie day for our friends with Down syndrome and their families in honor of WDSD. We enjoyed pizza and snacks along with the movie!
Dad’s Night Out
Fathers, grandfathers, and male caregivers met for a casual evening of conversation and food with other MADSS dads at Toby’s Supper Club this month! We always enjoy this time to catch up.
Library Storytime
This month we went to Hedberg Public Library in Janesville to listen to stories from the Children’s Librarian. The kids had so much fun engaging in these interactive stories.
North Central
World Down Syndrome Day Celebration
Families gathered to celebrate World Down Syndrome Day at the Clara R. McKenna Aquatic Center! Thank you to everyone who joined us for a day of swimming and celebration! We even enjoyed some ice cream thanks to Culver’s! We had so much fun celebrating one of our favorite days of the year!
Sheboygan
WDSD Waterpark Event
DSAW-Sheboygan families enjoyed an early World Down Syndrome Day celebration at Breaker Bay Waterpark! This was such a great escape from the winter weather. The kids splashed in the water and parents enjoyed socializing with each other. Thank you to everyone who joined us in celebrating with this fun day at the waterpark!
Fox Cities
Teen FrienDS Club
This month our Teen FrienDS Club had a zentastic time at “Be” doing yoga! Thanks to the instructors for leading our teens through a great class!
KITE Conference
DSAW-Fox Cities partnered with SOAR Fox Cities, WisconSibs, and the Autism Society of Wisconsin to host a mini conference for parents, adult siblings, self-advocates and professionals. This was a great opportunity to learn about disability-related topics through breakout sessions and to connect with local community resources.
Luv 2 Play Event
Babies, toddlers, and school aged children with Down syndrome attended a playdate at Luv 2 Play Indoor Playground! The kids enjoyed escaping the winter weather at the indoor playground. We also enjoyed pizza!
World Down Syndrome Day Party
Families celebrated World Down Syndrome Day with a fun filled afternoon at Monkey Joe’s! Kiddos got to play in the inflatable play area and enjoy pizza while celebrating one of our favorite days!
Meet a DSAW Leader: Roxy
My name is Roxy Pryes and I am one of the board members for DSAW-Green Bay. My husband, Craig and I live in Casco with our two children, Ollie and Tori. I attended my first DSAW Awareness Walk back in 2012 when Ollie was just under 3 months old. I was in awe of all of the wonderful people I met that day. Our next DSAW sponsored event was a monthly play date where the other moms went crazy over Ollie. (Now that Ollie is a little older I get to be one of the moms going crazy over the new babies).
Over the course of the next few years my family attended play dates, parents nights out, and of course more walks. I knew from early on that I wanted to volunteer with DSAW but I was not able to right away due to balancing work and raising two young children. In 2017 I was able to help the rest of our newly forming board plan the Awareness Walk. Since then I have loved the brainstorming, planning, sleepless nights, and friendship that has come along with being part of the DSAW-Green Bay Board. In my free time (what is that?) I enjoy spending time with my family, camping in the summer, and reading (can't remember the last time this didn't involve a book with more pictures than words). I also enjoy my second job (first one is being mom to Ollie and Tori) working at a local clinic as a patient service representative. I absolutely love planning new events for DSAW Green Bay.
The Benefits of Equine Therapy
This post was written by Rachel Fischer of DSAW partner REINS, Inc.
Equine assisted activities and therapies (EAAT) encompass a wide range of vital programs servicing individuals with physical, psychological, emotional, behavioral, and social needs. At the core of all EAAT services lie the healing power of the horse. The therapeutic nature of horses has been recognized for centuries, dating back to early Grecian culture with the first documented research noted in the 18th-19th centuries (DePauw, 1986).
Key programming options within the realm of EAAT include: therapeutic riding, hippotherapy, interactive vaulting, therapeutic driving, and equine assisted learning. Therapeutic riding places recreational education of horsemanship skills at the forefront; thus, programs teach key riding skills with educational modifications to accommodate rider disabilities. Hippotherapy is the provision of occupational therapy, physical therapy, or speech therapy services using the horse as the therapeutic medium. Interactive vaulting offers therapeutic benefits through gymnastics-like activities on horseback. Therapeutic driving offers participants educational opportunities through carriage driving, allowing participation for those who may not be appropriate for mounted activities. Finally, equine assisted learning services utilize an experiential learning approach to promote the development of critical life skills including trust, leadership, assertiveness, communication, self-confidence and self-awareness (PATH Intl, 2019). All EAAT programs are recognized through the Professional Association of Therapeutic Horsemanship (PATH) International, a regulatory agency offering program guidance, regulatory guidelines, and supportive advocacy. Services are provided by PATH certified instructors or therapists.
Despite the wide array of optional programming, EAAT participants can experience extensive physical, cognitive, and socioemotional benefits. EAAT exists within an enjoyable and motivating environment, allowing certified instructors to target skills that may be otherwise challenging to address through traditional intervention.
Physical: Equine assisted activities offer a wide array of physical benefits including improved balance, coordination, strength, endurance, core strength, head control, gross motor skills, and fine motor skills. Horse anatomy (particularly pelvic girdle and lower extremity) mirrors human anatomy, a feature unique to horses and unable to be replicated in any other therapeutic environment (DePauw, 1986). Because of this comparison and compatibility, horses naturally offer three-dimensional movement, which allows PATH certified professionals to simulate and mimic natural human gait and movement while a rider is mounted (DePauw, 1986). This natural three-dimensional movement also challenges and alters the rider’s center of gravity which leads to activation and eventual strengthening/improvement in vital balance reactions (Zadnikar & Kastrin, 2011). Horseback riding inherently requires a high degree of core strength, head control and gross motor skills to maintain the appropriate position while astride (Champagne & Dugas, 2010). EAAT can also assist with tone management. Smooth, well controlled movement and the body heat from the horse can assist with high tone neutralization while shorter, more impulsive strides offer increased proprioceptive and vestibular input to improve hypotonia. Riders must also utilize fine motor skills and upper extremity coordination to direct and control their mount, offering opportunities to target improvement in these areas as well (Scott, 2005).
Cognitive: EAAT participants can additionally see a variety of cognitive benefits including improved attention, sequencing, memory, communication, spatial awareness, left/right discrimination, and safety awareness. Programs are often offered in group settings, thus allowing instructors to target communication and attention within the context of selected group activities (Scott, 2005). Participants must use clear cues to direct each specific equine therapist, thus improved communication is often noted through this intervention (DePauw, 1986). Specific horsemanship activities create improved spatial awareness and sequencing skills through enjoyable and motivating tasks (DePauw, 1986). Given the unique nature of this therapeutic intervention, participants must learn specific techniques and skills to safely navigate in the arena with noted carryover into everyday activities.
Socioemotional Benefits: EAAT participants experience a variety of social and emotional benefits as well, including, but certainly not limited to, improved social motivation, improved self-regulation, improved management of sensory behaviors, improved self-control, increased confidence, trust, leadership, and assertiveness. By the very nature of this therapeutic environment, EAAT offers a diverse sensory experience for all participants; this allows for decreased sensory sensitivities and improvements in sensory seeking behaviors (Holm et al, 2014). The equine therapists act as a vital team member and are highly intuitive to human behavior; horses invite self-reflection and review while offering participants a new way to see their internal landscape. Additionally, successful participation in EAAT and direct interaction with these powerful creatures directly results in improved self-confidence and assertiveness.
Equine assisted activities and therapies undoubtedly provide a strong foundation in horsemanship skills while also offering a wide array of physical, cognitive, social and emotional benefits. The power of the horse transcends disability, age, and skill to provide a motivating and enjoyable experience for all involved. All potential participants are encouraged to visit the PATH International Website (pathintl.org) to locate a program near their hometown.
ABOUT REINS: REINS, Incorporated is a 501(c)(3) non-profit organization, based in Sheboygan Falls, Wisconsin, committed to improving the lives of those with disabilities through individually structured classes using therapeutic interactions with horses. We are an equine assisted activities and therapy center accredited by the Professional Association of Therapeutic Horsemanship (PATH) International.
We offer summer programs with weekly classes as well as single session classes spring through fall. The program has excitedly experienced significant growth in the past three years, with over 100 expected participants registered for the 2019 season. We strive to provide support and growth opportunities for all our participants.
REINS offers three equine assisted activities: therapeutic riding, equine assisted learning and combined equine assisted learning/therapeutic riding. Therapeutic riding places emphasis on education of horsemanship skills with consideration of underlying disabilities. Equine assisted learning is a ground based, experiential learning approach designed to teach critical life skills including trust, leadership, assertiveness, self-awareness, self-confidence, communication and respect. The combined equine assisted learning/therapeutic riding program combines the same focus on life skill attainment through small group learning experiences with an additional focus on horsemanship skills.
Our mission: "REINS, Inc. provides personal growth, challenge and development through equine assisted activities and therapies to improve participants quality of life."
ABOUT THE AUTHOR: Rachel Fischer is blessed to be the Senior Instructor and Equine Professional at REINS Incorporated, Equine Assisted Activities and Therapies. She is a licensed occupational therapist and PATH certified instructor, dedicated to providing high quality, participant-centered, evidence based and compassionate services to ensure participants achieve their desired goals. She has a special interest in pediatric populations, although has worked with individuals of all ages both personally and professionally.
References
Champagne, D. & Dugas, C. (2010). Improving gross motor function and postural control with hippotherapy in children with Down Syndrome: Case report, Physiotherapy Theory and Practice, 26(8), 564-571.
DePauw, K.P. (1986). Horseback riding for individuals with disabilities: Programs, philosophy, & research, Adapted Physical Activity Quarterly, 3, 217-226.
Holm, M.B., Baird, J.M, Kim, Y.J, Rajora, K.B., D’Silva, D., Podolinsky, L.,…Minshew, N. (2014). Therapeutic horseback riding outcomes of parent-identified goals for children with autism spectrum disorder: An ABA multiple case design examining dosing and generalization to the home and community, Journal of Autism and Developmental Disorders, 44(4), 937-947.
PATH International (2019). Learn about EAAT. Retrieved from: https://www.pathintl.org/resources-education/resources/eaat/27-resources/general/193-eaat-definitions
Scott, N. (2005). Special needs special horses: A guide to the benefits of therapeutic riding. Denton, TX: University of North Texas Press.
Zadnikar, M., & Kastrin, A. (2011). Effects of hippotherapy and therapeutic horseback riding on postural control or balance in children with cerebral palsy: A meta-analysis, Developmental Medicine & Child Neurology, 53(8), 684-691.
Meet a DSAW Leader: Ryan
My name is Ryan Mattson. I am a fresh member of the DSAW Central Wisconsin Board and this is my AMA… oop, sorry wrong website, this is my Meet a DSAW Leader. My wife and I live in the Wausau area along with my step daughter Halena. On July 2, 2016 my wife and I had our first baby together, her name is Emma. I knew immediately that she had Down syndrome and upon questioning the nurse and Doctor, we were met with a refusal to acknowledge. Like many, we had some difficult times over the weeks to follow between being passed around to Pediatricians, trying to learning about this new world we’d stumbled into, waiting for official test results (they said I’m sorry), and wondering if Emma had any health issues. That said, Emma came away clear of the initial major health issues and is a joy and a wonder.
The DSAW Central WI Chapter was just being formed when Emma came along and we’re grateful to have been able to meet so many others with similar experiences in the local area. My wife and I have both recently transitioned from full-time corporate world jobs to each running our own businesses. This has allotted us some extra personal time to spend with the kids, attend events, and now also put some time into this chapter of DSAW.
In my personal life, I am constantly on the go and my list of projects seems to grow faster than it gets shorter. I like physical labor and I dabble in all trade skills, sometimes more out of necessity than enjoyment. When I have some spare time I like to read, play video games, collect memorable toys from my youth, and fiddle with photography. As a family we spend a lot of time outside, often bicycling/walking/running, eating ice cream (I’m working on obtaining my Briq’s 100lb club membership), and of course Emma also keeps us on the go.
Looking Back on February 2019
Milwaukee
Snow Tubing Outing
DSAW was able to take advantage of the snow in a big way at our Snow Tubing Outing. We were able to spend the day tubing down the snowy slopes while the sounds of laughter and excitement filled the air.
Valentine’s Day Dance
We had a blast at our annual Valentine’s Dance! The state office was transformed into a red and pink extravaganza. The night commenced with music, dancing, games, and a whole lot of food, including delicious mini bundt cake from our dessert sponsor, Nothing Bundt Cupcakes. There was even a surprise visit from Frozen’s Elsa! Thank you to the DSAW families that joined us for this night of fun.
Nail Painting Party This month, we hosted our first ever Nail Painting Party to kick off Valentine’s Day. It was an awesome day filled with excitement, nail polish, and plenty of snacks!
Family Movie Event Lights. Cameras. Action. Family Movie Night is a fun opportunity for DSAW families to get together for a relaxing night of snacks and movies. This month we enjoyed a sensory-friendly, private screening of Pete’s Dragon! Families got to enjoy the movie with the sound played lower and lights on brighter.
Digitability Class
Our brand-new Digitability class had another successful month! This new course is an award-winning employment-readiness program used to prepare students with special needs for today’s tech-driven workplaces. Young adults meet Mondays and Wednesdays through May at the state office. Learn more here!
Relationships Class
We just started two new sessions of a course on relationships for individuals with special needs. Throughout the course, we will talk about personal boundaries, dating, self-defense, stranger danger, and safety. Learn more here.
Nutrition & Wellness Class
This month we continued our two sessions of the Nutrition and Wellness Class offered through DSAW and DSAW-Family Services. The class meets twice a week throughout the winter and participants will learn about personal health and well-being, exercise, and healthy cooking.
Young Leaders Bootcamp
This month at Bootcamp we discussed taking responsibility for our actions! In March we will be talking about self advocacy, self-advocacy skills, and why they are important. Register Here!
Cooking with the Kiddos
Cooking with the Kiddos happens every first and third Wednesday at our State office! Don’t worry about dinner plans — we’ll take care of it! Kids 8+ are welcome to join us next month!
Coffee Club Coffee Club is hosted at our state office on the second and fourth Tuesday of every month. This acts as a great opportunity for DSAW parents and their loved ones to meet other families while enjoying coffee.
Motor Skills Playgroup
Our Motor Skills Playgroup meets every second and fourth Tuesday morning from 9:30 to 11:30! This group is a fun chance for children to learn occupational therapy skills in a free environment, while parents enjoy coffee and each other's company. We also offer free music therapy in conjunction with playgroup! Sign up to join us!
Young Leaders Academy
Our Young Leaders Academy at our West Allis office meets every second and fourth Thursday of the month. We also have a Young Leaders Class at our Northside location in Fox Point! This location meets the first and second Fridays of the month from 7 - 9 PM! Classes start off with an energetic game and end with an hour of employment-readiness curriculum. Self-Advocates are invited to join our class anytime.
Tween Club
The second Friday night of the month, DSAW transforms into a hoppin' place for tweens to hang out! This month we did winter/snow themed activities including a snowman activity and cookie decorating! Next month's Tween Club will be on Friday, March 8th. Drop your 10+ year old off for a night of games, snacks, activities, and more. Sign up!
Parent's Night Out
Each month, DSAW parents, grandparents, and caregivers get together for a night of casual conversation and free appetizers. We meet every second Friday of the month at Cleveland Pub, in conjunction with Tween Club! Come join us for one of our favorite nights of the month on Friday March 8th!
DADs Meeting Fathers and male caregivers are welcome to join us the first Thursday of every month to come together and support each other. We discuss upcoming events, listen to speakers, recruit volunteers, and talk about our kids while enjoying food and drinks at the New Berlin Ale House.
Central Wisconsin
Movie Event
We had a “tale as old as time” at our own private screening of Disney’s Beauty and the Beast at the Cedar Creek Marcus Theatre. We were able to relive the magic of the classic film while enjoying some delicious buttery popcorn and other fun snacks!
La Crosse
Parent’s First Call Training
In partnership with Parent to Parent of Wisconsin, we hosted a training to support parents and match them with new and expectant parents who are looking for resources and support. Connecting with another parent who has a child with Down syndrome can be one of the most helpful resources a parent will have – it can help make their journey a little easier.
Green Bay
Snow Tubing Event
Green Bay had a blast tubing on the snowy slopes at Kewaunee Winter Park! Smiles and laughter were abundant throughout the day despite the cold weather! Thank you to all the families who joined us for this fun day.
MADSS
Mom’s Take 5
MADSS has a Mom’s Night Out on the 5th of every month! This month, moms gathered at the Great Dane Pub & Brewing Co. We love this time for moms to enjoy conversation with one another over appetizers and drinks.
Dynamic Duals: DS-ASD MADSS & GiGi’s Playhouse sponsored Dynamic Duals this month! It is a group for families with a child with DS-ASD or other significant behavioral challenges. It’s a time to connect and have fun, share successes and resources, brainstorm ideas and strategies for challenges. For more information or to RSVP, please contact Wendy Kaplan at: info@MADSS.org.
Family Bowling & Pizza Party MADSS families enjoyed a Sunday Funday at Schwoegler’s bowling alley! We had so much fun bowling and mingling with families while eating yummy pizza!
Parent’s Night Out This month we had our first ever MADSS Parent’s Night Out in Rock County! Parents, grandparents, adult siblings, and caregivers joined us for a casual evening of conversation and good eats at Texas Roadhouse. Thank you to those who came out and joined us!
Sheboygan
DSAW-Sheboygan families enjoyed a fun day at Just4Fun Playland in February! The kiddos enjoyed the indoor playground that’s equipped with fluffy white clouds, a faux yard, a basketball court, and a giant rainbow play-system superstructure! This was such a fun way to to escape the winter weather together for a little indoor fun!
Fox Cities
Teen FrienDS Club
This month our teens painted their own pottery at the Fire in Appleton! Teen FrienDS Club is held at the DSAW-Fox Cities Office on the second Friday of each month from 6:30-9:30pm during the months of September-May. The club is for teens with Down syndrome ages 13-19. If your teen is interested in joining, please contact Maria SteenPorte at maria@dsawfoxcities.org.
Valentine’s Dance
Thank you to all of the families that joined us for our Valentine’s Dance at the Elk Lodge! Everyone had fun, young & old! A DJ and dancing provided great entertainment. We also enjoyed snacks, drinks, and crafts!
